So, another week another set of fun "challenges" were presented :). This past week Matt went out of town for business for 3 nights, this is the first time he's had to go out of town since the babies were born. With a little over night help from my mom and my sister (and Josephine) we survived! Matt came home and we were all in one piece, myself included!
Then on Monday we had a follow up developmental peds appointment, which let me start by saying I may have spoken a little too soon about Vivian's bottle taking abilities. She is really enjoying being strictly paced while eating but when we increased her from 2 bottles a day up to 4 or 5 she kinda went back to her "old ways" of not really wanting to eat orally. So, back to 2 bottle per day we went because that's where she was happy. At our appointment Monday the doctor decided because she hadn't really improved we needed to move forward with other testing to rule out some other obstacles that might be preventing her from wanting to eat. So today she had a bronchoscopy done. This is where they take a tiny wire with a camera and put it down her nose to take pictures of her airway. Long story short, things looked good, no inflammation, or cysts or abnormal masses. She does have pharyngomalcia, which is basically means softening of the pharynx which is a part of the throat. It's my understanding this is due to her prematurity and she will eventually grow out of but it could take up to a year. This is why she "squeaks" occasionally when she is awake, eating or sleeping. The pulmonologist basically said we need to give her more time to grow, which could take several months to a year. He didn't really elude to whether or not this was 100% connected to her eating issue but it's possible. We just need to give her time and realize there is no quick fix, which is hard for me :) but I'm learning. We will move forward at Vivian's pace and give her positive experiences with the bottle and build slowly upon them and eventually she'll do it on her own, I know she will. She's an independent little girl who wants to do things her own way...I wonder where she gets that from? :)
In one of the blogs I follow I recently read something that struck a cord with me and I'm going to try to stand by. "Prayer provides peace when there can be no answers and when there can be no understanding", so each day I've decided I am going to pray that God gives me peace. I don't need answers and I don't need to understand why my little girl has to go through all of this because it's out of my hands and placed in someone else's hands with much more power then myself and I know we'll get through this. I always say, "hey this could be way worse", I have a happy healthy little girl and big boy and I couldn't be happier that God chose me...ME of all people to raise them and he gave me an awesome husband who has turned into an unbelievably awesome Daddy! We get to see them smile, laugh, "talk" and kick their feet with glee and these are the things that make my day.
Onto other news, Oliver is still sleeping pretty well. He's getting up just once in the night to eat and maybe a few times for a pacifier "fix". Both babies go down to bed around 8ish. Oliver has slowed down on his eating just a bit but he's still about 5 pounds bigger then Vivian, weighing in at around 15 pounds. Vivian weighed 10 pounds 5 ounces today. She's working hard to gain weight but hey she's a girl...no need to be a big as her big brother! Vivian is still sleeping well through the night, but we are still "cheating" and feeding her without waking her (around 2 AM) so she too sleeps through the night and would probably sleep longer but we do wake her around 5 or 6 AM and feed her. They are just growing and changing every day and it's really going soo fast! I do not want to rush either of my babies out of any of their stages of life so I will enjoy each day as it comes and try to be more patient with what God has planned for us in regards to Vivian's bottle feeding.
I haven't said thanks in while, so thanks for all the love, prayers, calls, texts, and comments! We have wonderful family and friends, so to all of you out there...thank you!
Below are some pictures....enjoy!
Vivian sleeping in Mommy's arms after a feeding.
Jail birds on the loose. We've been trying to get out more to feel more "normal", especially before flu and cold season hits.
Happy, happy babies!
Sleeping boy with his "lovie" (He does like to hold onto something when he's eating or sleeping in his carseat not swaddled up but usually he prefers a dirty old burp rag...he's a boy...)
Snuggled up, Oliver was moments from a meltdown. When the boy wants to eat there's really no time for photos, just look at that thigh...)
10 thing I am thankful for this week....
fall days and evenings
Matt taking 2 days off work this week
5 hours of consecutive sleep
having a beer with Matt while making formula and bottles for the next day